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KIDNEY STONES SUCK!!!!

3,331 Views | 32 Replies | Last: 2 yr ago by Absolute
Absolute
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AG
Only the third one I have had and it has been over a decade since the last one, BUT OMG I am ready for this alien monstrosity to be gone!!!

Highly recommend not trying it out. Take my word for it!!
Matsui
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AG
Esh best of luck for a speedy and soft passing
JobSecurity
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AG
Alternate a glass of water and a light beer, repeat until passed
MouthBQ98
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AG
I passed a 4.5mm one once that resembled a sticker burr. Pissed orange and pink for 2 days. Took 3 days to pass it. Worst pain ever.

Quit drinking soft drinks and cut way back on milk and not one since.
Moral High Horse
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The Grinder (99)
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AG
Man, I hope it passes soon. Sorry for what you're going through
Absolute
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Saw the Doc today. Apparently the one that is moving is a scout. There are a couple big brothers hanging out in the kidneys that he said we have to go in and remove. Doesn't sound like a huge deal. Cannot imagine letting them wait to move.

Getting old sucks....
FTACo88-FDT24dad
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AG
I had to have a lithotripsy about three years ago when out of nowhere I got slammed with the most ungodly pain during a trip to San Antonio. It hurt so bad I was puking. Got to the ER at Methodist in San Antonio because I thought I was having an attack of appendicitis. When I stumbled into the ER the attending nurse said "You're having a kidney stone." I was dismissive. But, after a CT scan, yep. I had an 8mm alien beast that was stuck at the exit point of the kidney into the ureter. The doc said "That one will not pass on its own." So, got some morphine to get me through the night and the next morning, they wheeled me into surgery and I was back in my room in less than an hour after the procedure. The worst part was the catheter they left in my hooter to allow for drainage. It had to come out on day 7 post-op. I pulled it out myself and that was ... strange.

The likley culprits in my case were too much mineral/sparkling water, too much Vitamin D (Covid preventitive) and too much almonds.

No issues since. Thank God above. Most brutal thing I have ever experienced painwise.

This is what I pulled out of myself. The blue section extended all the way to my kidney through the urethra, bladder and ureter. The "fishing line" was hanging out of my @&!$ by about 6 or 7 inches.

Absolute
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AG
I am currently having a 3mm or so baby move through. I knew what it was from having one 10 or 12 years ago. Went to the er Saturday night with bad, but not puking pain. Got my morphine, calmed it down, got some other stuff they give you. Figured I would be good. That is how it went down last time.

The Ct scan showed a big one so knew I needed to follow up.

Sunday and Monday I felt fine. Just occasional twinge. Monday night it got pretty sore, so I took some meds and was ok. Tuesday I actually went on an inspection. Was a little sore, but nothing terrible, and I had only taken some aleve that morning. Finished my inspection and was driving home. Got more and more uncomfortable. Then moved into really really painful. Barely made it home. Swallowed a pain pill, called my wife. By the time she got home 10 or 15 minutes later, I had puked several times, vision was blurry, had chills, hand tingling. Never felt anything like it.

Back to the er. More morphine and some of whatever is the next one up. Ct this time says it is almost to the bladder. Yay. Went back home, spent yesterday doing office stuff and taking a pain pill on a schedule like after an ortho surgery.

Today is much better again. Saw the doctor and he led with scary sizes of ones still in the kidneys and recommend it that surgery. I signed up immediately. Still have to wait a week or so I guess.

Omw to OU for parent's weekend. Crossing my fingers that the one moving is almost out and the others stay put! Have plenty of pain medicine, but pretty sick of it after having had shoulder surgery this summer.
Absolute
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AG
You didn't have like a baf to pee in for a week did you? He explained the Stent (which is what that thing looks like) but didn't say much more about it.
FTACo88-FDT24dad
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Absolute said:

You didn't have like a baf to pee in for a week did you? He explained the Stent (which is what that thing looks like) but didn't say much more about it.
A baf? Not sure what that is but no, I just peed like normal. I did pee some blood and little clot looking things occasionally, but by 10 days post surgery I was normal. Pulling the stent out was a little weird but it didn't hurt. If you get one, my advice is when it's time to remove it just go in the shower, grab the wire and start peeing as you pull it out and don't stop until it's completely out.

Absolute
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Sorry. Typo. Bag

Good to know. That would really suck
AJ02
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AG
How are you guys getting morphine for kidney stones? I was getting them about every 3 months while on topamax for migraines. I was in the ER twice for them, and an urgent visit to my regular doctor once. None of those times would they give me any kind of pain pill other than OTC.
Absolute
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Can't really say, honestly. Exihibited and answered truthfully about the pain I was in and that is what they did. Personally, these are the only times I have had morphine and I don't like it much at all. Feels really icky. But it does work. Don't mind but don't particularly like typical Norco or such that I have had from surgeries and stuff, but will use it when it is appropriate.

Sarcastic thought for medicine today would be that the er want to do stuff to charge your insurance, shut you up and send you home ASAP to have room. Which isn't entirely their fault, I suppose. Neither of my experiences in this past week were particular inspiring about the system. But I am admittedly still in a really ****ty mode from not feeling great.

When it happened a decade ago, they did not prescribe any narcotics and did just recommend otc nsaids. This time they did prescribe a small amount of narcotics and recommend nsaids for inflammation.

Not sure what the best most appropriate answer is. These stones are such a random and unpredictable thing. They have no clue how fast they are going to move. The ones I had last time sent me in one time and then never really hurt again even when passing. This one sent me in when it left the kidney and again as it neared the bladder. I had narcotics from them, but wasn't taking them until it was too late.



bigtruckguy3500
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Absolute said:

Can't really say, honestly. Exihibited and answered truthfully about the pain I was in and that is what they did. Personally, these are the only times I have had morphine and I don't like it much at all. Feels really icky. But it does work. Don't mind but don't particularly like typical Norco or such that I have had from surgeries and stuff, but will use it when it is appropriate.

Sarcastic thought for medicine today would be that the er want to do stuff to charge your insurance, shut you up and send you home ASAP to have room. Which isn't entirely their fault, I suppose. Neither of my experiences in this past week were particular inspiring about the system. But I am admittedly still in a really ****ty mode from not feeling great.

When it happened a decade ago, they did not prescribe any narcotics and did just recommend otc nsaids. This time they did prescribe a small amount of narcotics and recommend nsaids for inflammation.

Not sure what the best most appropriate answer is. These stones are such a random and unpredictable thing. They have no clue how fast they are going to move. The ones I had last time sent me in one time and then never really hurt again even when passing. This one sent me in when it left the kidney and again as it neared the bladder. I had narcotics from them, but wasn't taking them until it was too late.





Morphine has less addiction potential than oxycodone/hydrocodone (Percocet/Norco) because it relieve pain but doesn't give as much euphoria. So that is becoming a bit more of the standard medication for ER docs to give. Lots of surgeons and inpatient doctors are still giving the oxy/hydrocodone.

I can tell you for a fact, that every ER I have ever been in, the ER doc doesn't work for the hospital. He/she doesn't care at all about charging your insurance as much as possible by doing unnecessary tests/imaging. He/she doesn't want to miss a potentially life altering diagnosis and get sued later. So they do sometimes order tests that are unlikely to show the diagnosis, but are useful in ruling out potentially lethal causes of pain otherwise.

I know one old school doc that never scans for kidney stones if the urine is bloody, and the patient looks like they have a stone. I know one younger one that always scans, even if the patient had a prior stone but it's been over a year since the last scan. Because there are diagnoses that can mimic a kidney stone that are seriously life threatening.

What meds you get is determined by how much pain the ER doc thinks you're in, the state you're in, how nice/concierge of a hospital you're at, and what they think will be necessary to keep you from coming back to the ER. Believe it or not, ER docs don't like patients coming back for the same thing. One if the indications for admission to the hospital for a kidney stone is uncontrolled pain. As such, if they can't get your pain under control with NSAIDs, and tylenol, they'll give opioids. Another indication is uncontrolled vomiting. So they'll often prescribe anti-emetics even if you don't have nausea/vomiting yet.
IslandAg76
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Just a thought-I had multiple "events" with calcium oxalate stones. No real recommendations from Drs as to how to prevent other than drink more water.

I started on hydrochlorthiazide 12.5 mg once a day. "a very low dose diuretic" and NO MORE EVENTS. Maybe a coincidence, maybe not but I take that low dose daily. My current Dr says no problem with that dosing
bigtruckguy3500
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IslandAg76 said:

Just a thought-I had multiple "events" with calcium palate stones. No real recommendations from Drs as to how to prevent other than drink more water.

I started on hydrochlorthiazide 12.5 mg once a day. "a very low dose diuretic" and NO MORE EVENTS. Maybe a coincidence, maybe not but I take that low dose daily. My current Dr says no problem with that dosing
That is actually a common treatment for kidney stones made of calcium. I'm surprised your doctors didn't consider it, or maybe they did and just didn't tell you. But thiazide diuretics like HCTZ cause increased levels of things like calcium, glucose, lipids, and uric acid in your blood (and thus less of it in your urine).

That's why trying to catch the stone is super useful.
IslandAg76
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AG
This was probably 20 or more years ago and apparently wasn't common knowledge back then
Absolute
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AG
I know you are absolutely correct about the er situation and docs. What I said was unfair.

The first er was actually pretty good,as it was the middle of the night and it wasn't busy.

Second was medical city Dallas. Went there because the urologist I had an appointment scheduled is officed down there. Even he agreed that was a bad choice.

The er experience was weird. They are so overwhelmed they are doing things in a way that was hard to understand when I was practically dwlerious from pain and In a really bad mood. They literally gave me morphine and zofran in the hallway as they worked you through the cattle call.

At the time I didn't understand what was going on because of my condition and because they did nothing to explain the weird procedure. They just kept telling you to sit in this hall, sit in the waiting room, etc. Once I got to a room after 2 or 3 hours it was better, but still there was a weird disconnect and lack of close care (for lack of a better description.). That too could probably be related to the overload and maybe management and just staff burnout?

Thankfully, I don't go to emergency rooms very much. The three stones are the only times I can think of except for some kid visits over the years.
BoDog
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I dont know why but these put the fear of God in me. Question for OP and others who have had this... Are you all coffee drinkers? I have always been told that coffee/caffine help keep the kidneys clear and cleansed. Dont know if this is BS or not?
Absolute
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Yes. I drink coffee.

I believe there are lots of factors as to why people get them. Some dietary, some hereditary maybe even some environmental. I didn't really pursue that line of questions with the doctor yet. Waiting to let them find out the exact type after my surgery.
I think mine is a comdo type thing. Went a long time between episodes, unless I regularly pass little ones and don't notice. I know this year was not "normal" for me. Had shoulder surgery in June, so I was laid up for a while, different routine, etc. Then it was so brutally hot when I went back to working.


After this experience I have decided that, while it would hurt more (who really cares when you already say your pain is a 9 or so) I would almost prefer to be like FTAC where they have to immediately go in and break them up. The last two weeks have been pretty brutal. Even with painkillers on hand. It doesn't hurt all the time, only when it decides to move, but it is just nerve racking and annoying. Since it isn't like you can just not work or just take weeks off waiting.

Very much looking forward to Friday and being done with it, for now at least.

Once I find out more actual information, I will check back and share.
AJ02
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AG
BoDog said:

I dont know why but these put the fear of God in me. Question for OP and others who have had this... Are you all coffee drinkers? I have always been told that coffee/caffine help keep the kidneys clear and cleansed. Dont know if this is BS or not?


Mine was 100% due to a prescription migraine medication. I'd never had a kidney stone in my life. Started the prescription and had one every 2-3 months for 2 years. Stopped the medication and I haven't had one since.

My stepbrother gets them whenever he drinks sodas.
FTACo88-FDT24dad
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AG
BoDog said:

I dont know why but these put the fear of God in me. Question for OP and others who have had this... Are you all coffee drinkers? I have always been told that coffee/caffine help keep the kidneys clear and cleansed. Dont know if this is BS or not?
The caffeine in coffee is a diuretic, which can cause you to pee a lot, so it could cause you to be effectively dehydrated which could increase the relative concentration of the stuff that forms stones in your kidneys. Caffeine is also something that can leach calcium out of your bones and into your blood, which is then filtered by the kidneys, etc etc.

If you're not drinking crazy amounts of coffee, then I don't think it's a problem, but everyone is different.

When I had my gut buster, it was during COVID, and I was drinking 3-4 cups of coffee each day, taking high amounts of Vitamins C & D, drinking lots of mineral/sparkling water and eating a ton of almonds. Each of which on their own can cause stones, but in combination at the levels I was consuming them, probably caused my metorite sized stone.
EMY92
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I don't mind kidney stones. When first diagnosed, the doctor decided it was time to go in and remove them. They found bladder cancer. I have now outlived everyone in my extended family that has been diagnosed with bladder cancer combined by four times.

As for the surgery, it's the same one I go through each year to check for cancer. I've done it 8 times now. It's no big deal at all.
Ghost of Andrew Eaton
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EMY92 said:

I don't mind kidney stones. When first diagnosed, the doctor decided it was time to go in and remove them. They found bladder cancer. I have now outlived everyone in my extended family that has been diagnosed with bladder cancer combined by four times.

As for the surgery, it's the same one I go through each year to check for cancer. I've done it 8 times now. It's no big deal at all.
Keep flexing and kicking ass.
If you say you hate the state of politics in this nation and you don't get involved in it, you obviously don't hate the state of politics in this nation.
Absolute
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Definitely an added benefit that did occur to me.
EMY92
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If there is a cancer history, they'll likely go up into each kidney.

My family is like the history of cancer, so I get a lot of tests done now that I've had it. My dad died of bladder cancer, but survived renal cell 16 years earlier.
Absolute
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Don't have my family history. But they have to go I to both kidneys anyways to break up stones. So I guess that a two for one bonus!
neronero
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So sorry . I know how painful is that. I had couple of years ago and only strong painkillers could make the pain a little more bearable. Canadian Pharmacy website has a large choice of options and also detailed description of all those. Make sure you check them carefully before taking any meds.
Absolute
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Well things still suck! Apparently I am in the small percentage that the procedure causes A LOT of pain.

Doc was able to destroy the moving one that appears to be stuck trying to get into the bladder. Then was able to go up that left side and turn the big ones still in the left kidney to dust.

Unfortunately, the right side was too tight to get the equipment up. So he installed stents to cause things to widen/loosen up. Have to go back in 2 weeks to have the right side done.

All of that wouldn't be so bad, except that everything still hurts like hell. Was not the easy I was hoping for.

On the bright side, no mention of anything suspicious or cancerous! And, while the process is extended, I am told it will all work out.

Great weekend for some good football games to watch and do nothing but lay around. Might even get bored enough to watch the Rangers.
Slackjaw62
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I hated the ureteral stent for the week I had it. Pain levels were much higher than during the six weeks I was trying to pass the stone. What really hurt (at least in my case), was that when you pee your bladder contracts and since the stent is holding the ureter open, urine can reflux back up toward the kidney (which hurts like really bad kidney stone pain).

OP, most stones are calcium oxalate. There are certain foods you need to avoid if this is the case for you. Spinach is probably the absolute worst. Almonds and peanuts have a lot of oxalate, as do beets, Swiss chard, rhubarb, and kale.
The Artist Formerly Known as Yokel
Absolute
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Yep, that pain is very real. Biggest bummer is that i now have a few weeks to deal with it.

Will definitely be evaluating everything with the doc. Wants to do a 24 hour test once Al this acute stuff is done. Then we will figure out a plan. I really like the doctor. Seems very smart and has a great manner. So I feel pretty comfortable going forward.
Absolute
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AG
Did the Stent pain get better/ease up over time? On day 3 and, while better than day one, it still hurts pretty bad. Different than the stones, not as sharp but much more constant. And the reflux pain in the kidneys and general irritation when peeing is getting really old!

Doctor said I have to have them for 2 weeks to open up the right side so he can get up there to get the stones on that side. Going to be a long 2 weeks!
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