Focal Segmented Glomerulosclerosis (FSGS)

tailgating hall of fame

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I know this is a shot in the dark…..but I've recently been diagnosed with this rare kidney disease…..I was wondering if anyone here maybe has had an experience with this illness….

KidDoc

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11:05a, 12/4/23

AG

I've had two patients with it. Both ended up with kidney transplant and did well. Wish I could tell you something more positive.

No material on this site is intended to be a substitute for professional medical advice, diagnosis or treatment. See full Medical Disclaimer.

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In reply to KidDoc • 3:49p, 12/4/23

KidDoc said:
I've had two patients with it. Both ended up with kidney transplant and did well. Wish I could tell you something more positive.

I appreciate your response. If you don't mind me asking….how long from diagnosis until they were put on the transplant list?

KidDoc

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In reply to tailgating hall of fame • 4:35p, 12/4/23

AG

tailgating hall of fame said:
KidDoc said:
I've had two patients with it. Both ended up with kidney transplant and did well. Wish I could tell you something more positive.

I appreciate your response. If you don't mind me asking….how long from diagnosis until they were put on the transplant list?

Roughly 2 months, depends on kidney function labs.

No material on this site is intended to be a substitute for professional medical advice, diagnosis or treatment. See full Medical Disclaimer.

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In reply to KidDoc • 10:13p, 12/7/23

KidDoc said:
tailgating hall of fame said:
KidDoc said:
I've had two patients with it. Both ended up with kidney transplant and did well. Wish I could tell you something more positive.

I appreciate your response. If you don't mind me asking….how long from diagnosis until they were put on the transplant list?
Roughly 2 months, depends on kidney function labs.

Protein / creatinine ratio - 1531 mg / g creat
GFR - 64