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My mom's gradual memory loss that has gone from 5 mph to 500 mph since Jan. 1 - HELP!

2,596 Views | 17 Replies | Last: 2 yr ago by SoTxAg
amymc72
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AG
My mom is 78 years old and has been experiencing very gradual memory loss for 10-ish years. Has maintained her naturally lovely demeanor, just ask questions that have been more and more repetitive over the years.

She finally visited a neurologist in late November-ish - although the doctor was not a great fit (in personality or area of expertise - his focus is on sleep disorders), he did order an MRI. The neuro's conclusion was mild dementia and prescribed 30 minutes of exercise a day - nothing more. One of my closest friends is a radiologist - we obtained a copy of the MRI to share with her, and she said there was nothing atypical for somoeone my mother's age, and no significant brain shrinkage/degradation.

All was normal at Christmas when my parents, brother and his family came to visit. My mom was normal, but forgetful, though no moreso than the last time I saw her earlier in December.

About a week or so later - just after the first of the year - the wheels came completely off. She has been experiencing serious paranoia. Thinks that my dad is trying to get rid of her, trying to steal her money, etc. My parents have been married for 56 years. She is hiding things around the house, including her own phone and my dad's phone. My brother (Class of '98) lives near my parents and has helped "recover" the missing phones, and definitely feels like the hiding has been purposeful, though she has no recollection. I have been with her several times - taking her shopping and out to lunch - where all is well until it isn't, then she is very, very teary and very fearful that my dad is going to "leave her on the side of the road." I try to reassure her that nothing is further from the truth, while validating that I can see that she is very scared/upset.

She has been to visit her GP as follow up to the neuro visit multiple times now since the first week of January. My dad is keeping a log of her meds and demeanor/paranoid episodes. He is hesitant to take her to someone other than the GP she loves, but my brother and I both feel strongly that a psych evaluation is in order. She is currently on Seroquel and Lexapro, which were prescribed by her GP in early January. The GP added Clonazepam - .5mg as needed. She had three good days this week, but the last two have been kind of awful. More tears, not able to sleep, very paranoid.

I am also researching Alzheimer's Alliance support groups for my dad as a source of networking for medical care.

Any advice would be very much appreciated. They live in Arlington, so any DFW resources would be accessible. Thank you. It is terrible to watch.
Ryan the Temp
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AG
You really should get her into neurology for a more specific dementia diagnosis, to the extent possible. That will shape her care going forward.

Get a copy of The 36-hour day by Nancy L. Mace and Peter V. Rabins. It was a big help for my family when dealing with my Dad's ALZ. It covers varying types of dementia. We lost my MIL to Lewy Body dementia and it was a much more extreme challenge than dad's ALZ.

Every time you have a negative experience, stop and remind yourself it's the dementia doing it, not your mom.

You might talk to the doctor about Namenda and Lorazepam, depending on what your experiences have been with how her demeanor and symptoms progress through the day. Lorazepam was useful for getting my dad and MIL to stay asleep at night, which increased the umber of "good" hours we had through the day.

Several of us here have been through this. Please use us as a resource or simply a place to vent if you need it.





Stat Monitor Repairman
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Quote:

She is currently on Seroquel and Lexapro, which were prescribed by her GP in early January.
Read the first few lines of your post and thought 'I hope this lady isn't on an SSRI.'

I'd look hard at this issue.

I've heard story after story of seniors that are functional getting put on this stuff and dropping off the map.
ILikeBrains98
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AG
I'm not sure where you're located, but find a neurologist who specializes in elderly/dementia and then get a neuropsych eval from a neuropsychologist - ideally one who has a focus on elderly/dementia as well. It'll give you more answers on dementia type (if that's the diagnosis) and how to manage going forward. They'll also take into account any medications or other health issues that may be contributing to her symptoms.
Joan Wilder
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AG
My dad has Lewy body and Parkinson's, and Nuplazid really helped him.

As others have said, go to a neurologist who can give you a more specific diagnosis, and develop a care plan from there.
Buford T. Justice
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AG
I am so sorry that you are experiencing her condition.
My dad passed last June and had dementia. Looking back, I think that he had it in 2019, but things escalated quickly in 2023. Dementia is a cruel thing.
"Gimme a diablo sandwhich and a dr. pepper...to go"
amymc72
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AG
Thanks to everyone for feedback and suggestions so far. I am taking your advice as we move forward with a treatment (and dealing) plan moving forward - especially the SSRI info.

Just this evening I happened to check my email - not normal for a Saturday - and my dad emailed my brother and me to call his phone because it was missing somewhere in my parents' house. I called over and over until he heard/located his phone. My mom had hidden it between the mattress and box springs in a bedroom. This is not the first time.

The sudden onset of the really crazy behavior - coupled with it being SO out of character for her - is especially distressing. I know it is the dementia, and not her. She would be mortified to know she was behaving.
88planoAg
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AG
amymc72 said:

Thanks to everyone for feedback and suggestions so far. I am taking your advice as we move forward with a treatment (and dealing) plan moving forward - especially the SSRI info.

Just this evening I happened to check my email - not normal for a Saturday - and my dad emailed my brother and me to call his phone because it was missing somewhere in my parents' house. I called over and over until he heard/located his phone. My mom had hidden it between the mattress and box springs in a bedroom. This is not the first time.

The sudden onset of the really crazy behavior - coupled with it being SO out of character for her - is especially distressing. I know it is the dementia, and not her. She would be mortified to know she was behaving.
This is a complete aside, but for the phone issue maybe get a smart watch that can pair with the phone and locate it.

I agree with the others' suggestions. The GP doesn't have the subject matter expertise or the specific diagnostic info to handle medication management.
amymc72
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AG
Good idea on the watch. I use my watch to locate my own phone A LOT. And I don't have dementia. Yet. Hoping running a ton and food choices and fasting and all the things related to brain health will pay off in the end.
Hoosegow
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I took care of my mother for 10 years after her diganosis with Alzheimers. Here was our experience, and from what I was told, it is a pretty normal one. I'm not a doctor.

Think about memory and ability being connected by a bunch of strings. If a string is cut, no big deal. Over time, though, as more and more strings get cut, they either get jumbled or are no longer connected. At that point, the person loses the ability to remember or do X.

Two quick examples from Mom:
One day she forgot how to make coffee. She was visiting the house in Bandera. Different environment. She couldn't figure out how to scoop the coffee out. She ended up using a spoon, but holding the business end and using the handle to scoop.

She told a story about me getting hurt in football. Very interesting story. However, she took about 4 stories and merged them together to make a very good, but very untrue story.

Food for thought. Mom did pretty good for a long time unless you got her out of her routine or into an unfamiliar area. Perhaps since she was out of her routine, she struggled. Visit her at her house with few people, I wonder if you wouldn't have noticed anything wrong.

BadMoonRisin
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AG
I'm so sorry to hear this.

My mother in law was diagnosed with MIC (Mild Cognitive Impairment) about 3 or 4 years ago and just in the last year or so it seems like she has been progressive very quickly. It's absolutely devastating to watch not only her illness progress, but the stress and difficulty that has fallen upon my FIL, my wife, and her sister.
Tabasco
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AG
Throwing out a random thought... I have been dealing with my mom who has some sort of dementia and is now in memory care. Alzheimers/dementia and psychotic symptoms (my mom will have auditory and visual hallucinations) such as paranoia can be a sign of a UTI. Never knew this was a thing until the last year, but might be something to look into, particularly with the acute onset.
BTHOB
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AG
Tabasco said:

Throwing out a random thought... I have been dealing with my mom who has some sort of dementia and is now in memory care. Alzheimers/dementia and psychotic symptoms (my mom will have auditory and visual hallucinations) such as paranoia can be a sign of a UTI. Never knew this was a thing until the last year, but might be something to look into, particularly with the acute onset.


This x1000000000

It is absolutely astonishing at how rapidly some behavioral symptoms appear due to UTI. It is equally amazing at how quickly they resolve when the UTI has been treated.
Shooter McGavin
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AG
BTHOB said:

Tabasco said:

Throwing out a random thought... I have been dealing with my mom who has some sort of dementia and is now in memory care. Alzheimers/dementia and psychotic symptoms (my mom will have auditory and visual hallucinations) such as paranoia can be a sign of a UTI. Never knew this was a thing until the last year, but might be something to look into, particularly with the acute onset.


This x1000000000

It is absolutely astonishing at how rapidly some behavioral symptoms appear due to UTI. It is equally amazing at how quickly they resolve when the UTI has been treated.
This happened to my Mom as well.
JeepWaveEarl
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AG
did they test her for a UTI? I've seen a UTI causes these kinds of thing in aging individuals.


edit: I posted before I saw this mentioned the last 3 posts -- sorry!
amymc72
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AG
Thank you - will see if we can get her in for urinalysis ASAP.
JeepWaveEarl
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AG
Good. Can at least rule that out. I worked in hospice care and also assisted living for years and you could tell when folks had UTI when demented. It was a lot of the behaviors you're describing. And, unless you have first hand experience w it or have worked in those environments, you'd never even think of it. Even medical professionals.

Let us know how it comes out. I'll be curious.

*I do not mean demented in a negative way. It just is the way the word works in my sentence when speaking about dementi.
SoTxAg
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AG
UTI was/is cause of my 88 year old mom's issues also. If she has one, make sure they get the right antibiotic as i think they can prescribe different ones depending on infection.
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