MILs Ongoing COVID Story

4,610 Views | 22 Replies | Last: 4 yr ago by HotardAg07
TopFlightReject
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My MIL came down with symptoms back in early Jan with a positive test shortly after. She had what her PCP considered a pretty severe case. Has the typical no taste and no smell. Was pretty much bed-ridden with severe symptoms for about 7-8 days. Came out of it and tested negative about 4 weeks after the initial positive test. She never really had anything in her lungs. Severe cold like symptoms and a little bit of a dry cough. Kept track of her O2 sats and BP and took all the vitamins and supplements that her PCP recommended which pretty much followed Rev's regime.

Was feeling pretty much back to normal until last Sunday when the cold was rolling in. Her right hand started to swell (see pics below) and by Wednesday looked like a club. Thursday morning we urged her to go to local ER where they diagnosed her with cellulitis and gave a steroid shot and antibiotics and sent her on her way. By Thursday afternoon her left hand started to swell so she saw her PCP who directed her to go to ER where she's currently admitted. Clear Lake Regional. They've done bloodwork and Cat scans on hands, chest, and heart and also roped in an infectious disease doc. Come to find out she has viral pneumonia related to post COVID. Still no word on her hands and why they are swelling like they are. Have her on heavy antibiotics and steroids while she waits on autoimmune testing results.

Any docs here seen this type of post COVID related symptoms? Viral pneumonia kind of threw her for a loop because she wasn't showing symptoms.. just the hand swelling. Seems like the docs at Clear Lake Regional are at a loss and it's hard to get info when you're not allowed in. Thanks for any insight you can give.



AgRebel08
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AG
A friend of mine sister had similar symptoms and ended up with blood clots.

Dr told her it was an effect of covid. Had to have emergency surgery due to size.

In her leg.
Newoldarmy
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AG
No advice. Just prayed for her and you.
TopFlightReject
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They did check for blood clots as the doc told her they are seeing it in some cases post COVID. But none were found. Doc is leaning towards Lupus but wont know until results are back i guess.

She is getting discharged without getting the swelling under control, which boggles my mind.
Cepe
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AG
I know viruses do weird things and sometimes you never really shake them.

My daughter had mono over almost 2 years ago and still seems to have flare ups periodically.

I'm no doctor for sure but I think these things can hang around for a while if you react bad enough to them.
Kool
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AG
That looks like Angioedema, if a clot has been ruled out. Any new meds she has been started on, or is on, such as an ACE inhibitor?
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TopFlightReject
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Kool said:

That looks like Angioedema, if a clot has been ruled out. Any new meds she has been started on, or is on, such as an ACE inhibitor?


She had only been taking cholesterol medicine regularly. The steroids she's taking seem to help out the swelling during the day and then they get pretty bad by the time morning comes around. They've discharged her with mandatory rest and no work while she waits on additional test results.

culdeus
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AG
Same thing happened to a friend of mine's father, got discharged after 21 days and went home for 10 days, went back to hospital and had viral pneumonia and passed 3 days later. During the 10 days at home went on a fishing trip, attended church and ate out. (Not sure if all this was smart but he was cleared to do whatever, so ok I guess)

The rebound pneumonia thing is new (in my experience) I wonder if it's a feature of a variant or something. I don't remember people going back to normal then going back to the hospital, or god forbid dying later.

Petrino1
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Cepe said:

I know viruses do weird things and sometimes you never really shake them.

My daughter had mono over almost 2 years ago and still seems to have flare ups periodically.

I'm no doctor for sure but I think these things can hang around for a while if you react bad enough to them.
This is what my doctor told me about Mono. I still have lingering Covid symptoms 8.5 months after infection. My doctor said some people with Mono still have symptoms 9 months later.
Kool
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AG
TopFlightReject said:

Kool said:

That looks like Angioedema, if a clot has been ruled out. Any new meds she has been started on, or is on, such as an ACE inhibitor?


She had only been taking cholesterol medicine regularly. The steroids she's taking seem to help out the swelling during the day and then they get pretty bad by the time morning comes around. They've discharged her with mandatory rest and no work while she waits on additional test results.


So I learned something myself today. ACE inhibitors are the main cause of drug induced angioedema. Anti-inflammatories are way behind. But there are other causes:
Drug Induced Angioedema: A rare side effect of Rosuvastatin
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Newoldarmy
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AG
Damn. I don't want to hear that about covid. I'm now about 9 weeks out and still have on and off terrible fatigue that I really can't predict by any particular triggers and continuous joint pain in my hips and shoulders.

To the OP: keep us updated.
Petrino1
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Newoldarmy said:

Damn. I don't want to hear that about covid. I'm now about 9 weeks out and still have on and off terrible fatigue that I really can't predict by any particular triggers and continuous joint pain in my hips and shoulders.

To the OP: keep us updated.


Sounds like you might be a "long hauler" unfortunately. I still get the fatigue and joint pain in my shoulders, lower back, upper thigh.
robdobyns
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AG
This sounds like Longhaulers. Which is the post covid autoimmune symptom complex suffered by 10-15% of all patients after they recover from the acute phase of Covid.



This recent webinar has cutting edge info on the syndrome.
Dr Bruce Patterson is way ahead of the curve. He was formerly an academic at Stanford medical school.
Head of virological studies etc.
He founded a company called InCell Dx. They do testing of levels of cytokines etc.
in this video he talks about his testing kit for Longhaulers. He now has enough data to tell which drug works for which panel results.

He talks about Leronlimab and maraviroc. These are monoclonal antibodies that are immune modulators.

These inCell Dx kits are available at no charge I believe from the company.

Leronlimab is being studied in Longhaulers in a trial that started two weeks ago.



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TopFlightReject
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robdobyns - this is great information and thank you so much for passing it along. I'm astounded to see the support that is growing to help post COVID patients.

Quick update - MIL is still suffering major fatigue, joint pain, slight headache, and ongoing issues with the pneumonia. Her hands are still swollen but it seems the steroids have helped. She refuses to come stay with my wife and I so its hard to keep an eye on her as she lives alone.
HotardAg07
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AG
Hopeful thread for long haulers:
Petrino1
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HotardAg07 said:

Hopeful thread for long haulers:

Any doctors on here seen/heard anything similar?
robdobyns
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AG
I just saw this tonight. TLDR version : ivermectin is being used successfully for Longhaulers.



Dr Kory talks about this starting at 26:25.
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robdobyns
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AG
Here's last weeks you tube video from Dr Kory. It's all about the treatment for long haulers.

No material on this site is intended to be a substitute for professional medical advice, diagnosis or treatment. See full Medical Disclaimer.
Petrino1
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robdobyns said:

I just saw this tonight. TLDR version : ivermectin is being used successfully for Longhaulers.



Dr Kory talks about this starting at 26:25.
9 months long hauler here. I doubt my PCP would prescribe me this. Ive already seen several articles warning not to take this to fight covid. I would take Ivermectin in a second if I could get my hands on this lol. Ive taken zithromax and steroid pak with no luck.

Any advice on finding someone who would prescribe me Ivermectin?
farmrag
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ea1060 said:

robdobyns said:

I just saw this tonight. TLDR version : ivermectin is being used successfully for Longhaulers.



Dr Kory talks about this starting at 26:25.
9 months long hauler here. I doubt my PCP would prescribe me this. Ive already seen several articles warning not to take this to fight covid. I would take Ivermectin in a second if I could get my hands on this lol. Ive taken zithromax and steroid pak with no luck.

Any advice on finding someone who would prescribe me Ivermectin?
Tractor Supply, I know someone that has a Dr. in BCS and they prescribed it for them. Not sure who their Dr. is.
01agtx
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AG
Call Dr. Rev. I believe he does telemedicine appointments also.
Petrino1
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Dr rev!! Would love to get in touch with you lol.
robdobyns
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AG
Dr Rev.
No material on this site is intended to be a substitute for professional medical advice, diagnosis or treatment. See full Medical Disclaimer.
HotardAg07
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AG
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