Mine as well. I was fairly certain COVID would not kill me or send me to the hospital but WAY TOO many people I know had this long covid like the second poster. Also they were all young. It is like 10-15% of people under 50 experience this. The ones not getting vaccinated because the mortality rate is so small just ignore this data and it is all over the place. With the vaccine being readily available now and you refuse it and end up a long hauler that is a YP.74OA said:
More and more disturbing. The best medical system on the planet will get you through Covid alive, but can't ensure you'll come out of it healthy? This was my motivator to get vaccinated.
No Treatment?
Good lord this sucks. Have you not seen anyone for the last 11.5 months?ea1060 said:
Ive talked about my story several times before on this forum. But I'm an 11.5 month covid long hauler. Basically for the past 11.5 months I feel fine for 3-4 days then feel like absolute dog crap for 4-5 days. Rinse and repeat. Symptoms are typical covid: Feverish feeling, chills, feel warm, sore throat, ear aches, muscle/joint pain, fatigue, brain fog. I got fully vaccinated about a month and a half ago, it seemed to help a little but the symptoms came back in full force the past week and a half. Hard to get out of bed some days.
It's gotten to the point where I'm thinking about quitting my job and just focusing on recovering and my health. My job Can be pretty stressful and the stress triggers covid symptoms. Unfortunately there's not much the doctors can do besides tell me to wait it out and be patient. Ivermectin seems to help the long haulers somewhat so I've been thinking about asking my doctor for that. Theres several folks on the reddit long hauler sub that are still experiencing symptoms 14 months later with no end in sight.
Im an otherwise healthy 35 year old male just for reference.
I think this is the right way of thinking of it. Anecdotal data most definitely hints at more widespread incidence than research efforts have so far documented.Quote:
Your points are valid and I only have anecdotal evidence myself but I know three people with these long haul issues and it sucks for them. One was an avid runner and he hasn't been able to in over a year now. All of these people I know are under 50 as well. I read the 10% thing in some other articles. I guess it will eventually come out exactly how many experience this, but there is enough anecdotal data to suggest it's far greater than the .4% death rate or 3% hospitalization rate. I couldn't care less if people are vaccinated or not but seeing the people I know made me want to get it more so than dying or being hospitalized which seemed unlikely.
Quote:
The team began by looking at data recorded between March 24-Sept. 2, 2020 from about 4.2 million app users with an average age of 45, about 90 percent of whom lived in the U.K., with smaller numbers from the U.S. and Sweden.
For this particular study, the researchers decided to focused on 4,182 app users, all with confirmed COVID-19, who had consistently logged in their symptoms. Because these individuals also started using the app when they still felt physically well, the researchers could assess their COVID-19-associated symptoms over the course of the illness.
While most people who developed COVID-19 were back to normal in less than two weeks, the data suggest that one in 20 people with COVID-19 are likely to suffer symptoms of Long COVID that persist for eight weeks or more. About one in 50 people continued to have symptoms for 12 weeks or more. That suggests Long COVID could potentially affect many hundreds of thousands of people in the U.K. alone and millions more worldwide.
Quote:
Real-Time Studies Defining Brain Fog
The landscape may begin to become clearer as real-time research continues to emerge about the long-term effects of COVID-19 infection. A large study published Tuesday in The Lancet Psychiatry assessed long haul patients within six months of diagnoses for the incidence of 14 neurological and psychiatric conditions including ischemic stroke, psychotic mood, anxiety disorders and substance abuse.
Among the 236,379 post-COVID-19 patients, 1 in 3 were diagnosed with a neuropsychiatric condition within the next six months, most commonly mood disorders, and 12.8% of those were first-time diagnoses of the illness. In fact, compared to the control groups, first-ever diagnoses were nearly twice as high. Potentially more concerning was the fact that these diagnoses included dementia and stroke.
Quote:
(SACRAMENTO)
More than one in four COVID-19 patients develop long-haul symptoms lasting for months even if they had mild cases, according to a handful of studies that have emerged recently.
Doctors have been estimating one-quarter to one-third of COVID-19 patients become long haulers, as many patients call themselves. Now, four studies published since February confirm that range. They show that 27% to nearly 33% of patients who had COVID-19 but did not need to be hospitalized later developed some form of long-haul COVID.
Wow, those long-COVID numbers are significantly higher!Windy City Ag said:I think this is the right way of thinking of it. Anecdotal data most definitely hints at more widespread incidence than research efforts have so far documented.Quote:
Your points are valid and I only have anecdotal evidence myself but I know three people with these long haul issues and it sucks for them. One was an avid runner and he hasn't been able to in over a year now. All of these people I know are under 50 as well. I read the 10% thing in some other articles. I guess it will eventually come out exactly how many experience this, but there is enough anecdotal data to suggest it's far greater than the .4% death rate or 3% hospitalization rate. I couldn't care less if people are vaccinated or not but seeing the people I know made me want to get it more so than dying or being hospitalized which seemed unlikely.
The NIH is working through a well-funded and more all-encompassing research project and we are already seeing different efforts trickling in. There are a bunch of other bona fide research pieces coming in from other quarters as well. Some good reads.
https://directorsblog.nih.gov/?s=long+covidQuote:
The team began by looking at data recorded between March 24-Sept. 2, 2020 from about 4.2 million app users with an average age of 45, about 90 percent of whom lived in the U.K., with smaller numbers from the U.S. and Sweden.
For this particular study, the researchers decided to focused on 4,182 app users, all with confirmed COVID-19, who had consistently logged in their symptoms. Because these individuals also started using the app when they still felt physically well, the researchers could assess their COVID-19-associated symptoms over the course of the illness.
While most people who developed COVID-19 were back to normal in less than two weeks, the data suggest that one in 20 people with COVID-19 are likely to suffer symptoms of Long COVID that persist for eight weeks or more. About one in 50 people continued to have symptoms for 12 weeks or more. That suggests Long COVID could potentially affect many hundreds of thousands of people in the U.K. alone and millions more worldwide.
https://www.biospace.com/article/covid-19-long-haulers-real-time-research-clarifying-the-condition/Quote:
Real-Time Studies Defining Brain Fog
The landscape may begin to become clearer as real-time research continues to emerge about the long-term effects of COVID-19 infection. A large study published Tuesday in The Lancet Psychiatry assessed long haul patients within six months of diagnoses for the incidence of 14 neurological and psychiatric conditions including ischemic stroke, psychotic mood, anxiety disorders and substance abuse.
Among the 236,379 post-COVID-19 patients, 1 in 3 were diagnosed with a neuropsychiatric condition within the next six months, most commonly mood disorders, and 12.8% of those were first-time diagnoses of the illness. In fact, compared to the control groups, first-ever diagnoses were nearly twice as high. Potentially more concerning was the fact that these diagnoses included dementia and stroke.
https://health.ucdavis.edu/health-news/newsroom/studies-show-long-haul-covid-19-afflicts-1-in-4-covid-19-patients-regardless-of-severity/2021/03Quote:
(SACRAMENTO)
More than one in four COVID-19 patients develop long-haul symptoms lasting for months even if they had mild cases, according to a handful of studies that have emerged recently.
Doctors have been estimating one-quarter to one-third of COVID-19 patients become long haulers, as many patients call themselves. Now, four studies published since February confirm that range. They show that 27% to nearly 33% of patients who had COVID-19 but did not need to be hospitalized later developed some form of long-haul COVID.
Oh Ive been around others this entire time. Im not contagious and Im fully vaccinated as well. I try and not to be around others while I have symptoms, but that can be very difficult since I will feel fine for a few days and then it hits me out of nowhere when Im out with friends/family. The symptoms have no rhyme or reason. Sometimes they last all day, other times they last for an hour.Tex117 said:Good lord this sucks. Have you not seen anyone for the last 11.5 months?ea1060 said:
Ive talked about my story several times before on this forum. But I'm an 11.5 month covid long hauler. Basically for the past 11.5 months I feel fine for 3-4 days then feel like absolute dog crap for 4-5 days. Rinse and repeat. Symptoms are typical covid: Feverish feeling, chills, feel warm, sore throat, ear aches, muscle/joint pain, fatigue, brain fog. I got fully vaccinated about a month and a half ago, it seemed to help a little but the symptoms came back in full force the past week and a half. Hard to get out of bed some days.
It's gotten to the point where I'm thinking about quitting my job and just focusing on recovering and my health. My job Can be pretty stressful and the stress triggers covid symptoms. Unfortunately there's not much the doctors can do besides tell me to wait it out and be patient. Ivermectin seems to help the long haulers somewhat so I've been thinking about asking my doctor for that. Theres several folks on the reddit long hauler sub that are still experiencing symptoms 14 months later with no end in sight.
Im an otherwise healthy 35 year old male just for reference.
Understood and as I stated earlier, I'm not denying the existence of some long term side effects from Covid in certain individuals... the point I am making is that if is that prevalent, why is there not more tangible evidence?Irwin M. Fletcher said:
Your points are valid and I only have anecdotal evidence myself but I know three people with these long haul issues and it sucks for them. One was an avid runner and he hasn't been able to in over a year now. All of these people I know are under 50 as well. I read the 10% thing in some other articles. I guess it will eventually come out exactly how many experience this, but there is enough anecdotal data to suggest it's far greater than the .4% death rate or 3% hospitalization rate. I couldn't care less if people are vaccinated or not but seeing the people I know made me want to get it more so than dying or being hospitalized which seemed unlikely.
Well, at least you aren't just quarantining at your place for the last year.ea1060 said:Oh Ive been around others this entire time. Im not contagious and Im fully vaccinated as well. I try and not to be around others while I have symptoms, but that can be very difficult since I will feel fine for a few days and then it hits me out of nowhere when Im out with friends/family. The symptoms have no rhyme or reason. Sometimes they last all day, other times they last for an hour.Tex117 said:Good lord this sucks. Have you not seen anyone for the last 11.5 months?ea1060 said:
Ive talked about my story several times before on this forum. But I'm an 11.5 month covid long hauler. Basically for the past 11.5 months I feel fine for 3-4 days then feel like absolute dog crap for 4-5 days. Rinse and repeat. Symptoms are typical covid: Feverish feeling, chills, feel warm, sore throat, ear aches, muscle/joint pain, fatigue, brain fog. I got fully vaccinated about a month and a half ago, it seemed to help a little but the symptoms came back in full force the past week and a half. Hard to get out of bed some days.
It's gotten to the point where I'm thinking about quitting my job and just focusing on recovering and my health. My job Can be pretty stressful and the stress triggers covid symptoms. Unfortunately there's not much the doctors can do besides tell me to wait it out and be patient. Ivermectin seems to help the long haulers somewhat so I've been thinking about asking my doctor for that. Theres several folks on the reddit long hauler sub that are still experiencing symptoms 14 months later with no end in sight.
Im an otherwise healthy 35 year old male just for reference.
ea1060 said:
Ive talked about my story several times before on this forum. But I'm an 11.5 month covid long hauler. Basically for the past 11.5 months I feel fine for 3-4 days then feel like absolute dog crap for 4-5 days. Rinse and repeat. Symptoms are typical covid: Feverish feeling, chills, feel warm, sore throat, ear aches, muscle/joint pain, fatigue, brain fog. I got fully vaccinated about a month and a half ago, it seemed to help a little but the symptoms came back in full force the past week and a half. Hard to get out of bed some days.
It's gotten to the point where I'm thinking about quitting my job and just focusing on recovering and my health. My job Can be pretty stressful and the stress triggers covid symptoms. Unfortunately there's not much the doctors can do besides tell me to wait it out and be patient. Ivermectin seems to help the long haulers somewhat so I've been thinking about asking my doctor for that. Theres several folks on the reddit long hauler sub that are still experiencing symptoms 14 months later with no end in sight.
Im an otherwise healthy 35 year old male just for reference.
Very interesting, your wifes symptoms sound exactly like mine. The littlest amount of stress will just seem overwhelming and then bring about the symptoms. Sometimes even writing a short email will seem like a huge chore and take forever to write.jamey said:ea1060 said:
Ive talked about my story several times before on this forum. But I'm an 11.5 month covid long hauler. Basically for the past 11.5 months I feel fine for 3-4 days then feel like absolute dog crap for 4-5 days. Rinse and repeat. Symptoms are typical covid: Feverish feeling, chills, feel warm, sore throat, ear aches, muscle/joint pain, fatigue, brain fog. I got fully vaccinated about a month and a half ago, it seemed to help a little but the symptoms came back in full force the past week and a half. Hard to get out of bed some days.
It's gotten to the point where I'm thinking about quitting my job and just focusing on recovering and my health. My job Can be pretty stressful and the stress triggers covid symptoms. Unfortunately there's not much the doctors can do besides tell me to wait it out and be patient. Ivermectin seems to help the long haulers somewhat so I've been thinking about asking my doctor for that. Theres several folks on the reddit long hauler sub that are still experiencing symptoms 14 months later with no end in sight.
Im an otherwise healthy 35 year old male just for reference.
Minus the sore throat and ear ache, that sounds remarkably similar to my wife's West Nile this past summer. She would have the fever, brain fog, body aches for typically 4 or 5 days a week after the initial few months and it lasted 5 or 6 months total
Eventually she took some leave of absense for a week or two, burned some PTO, and started back slowly, doing 6 hour days, take a Friday off of needed...etc.
Anything stressful really made the west Nile come out of hiding. Even a phone call at work that was "extra".
She also slowly started walking, since initially as much as sweeping the floor for 5 minutes brought the symptoms on. Then after 5 min a day walking she would do 5 min twice a day and so on
All this per her Drs advice. She Eventually got over it that way. She got steroids multiple times that seemed to help jump start the healing but then she would have 2 good days, think things were good and hit the floor running only to regress.
I don't know if something like that would help with covid but I feel your pain
My wife was 41 at the time
ea1060 said:Very interesting, your wifes symptoms sound exactly like mine. The littlest amount of stress will just seem overwhelming and then bring about the symptoms. Sometimes even writing a short email will seem like a huge chore and take forever to write.jamey said:ea1060 said:
Ive talked about my story several times before on this forum. But I'm an 11.5 month covid long hauler. Basically for the past 11.5 months I feel fine for 3-4 days then feel like absolute dog crap for 4-5 days. Rinse and repeat. Symptoms are typical covid: Feverish feeling, chills, feel warm, sore throat, ear aches, muscle/joint pain, fatigue, brain fog. I got fully vaccinated about a month and a half ago, it seemed to help a little but the symptoms came back in full force the past week and a half. Hard to get out of bed some days.
It's gotten to the point where I'm thinking about quitting my job and just focusing on recovering and my health. My job Can be pretty stressful and the stress triggers covid symptoms. Unfortunately there's not much the doctors can do besides tell me to wait it out and be patient. Ivermectin seems to help the long haulers somewhat so I've been thinking about asking my doctor for that. Theres several folks on the reddit long hauler sub that are still experiencing symptoms 14 months later with no end in sight.
Im an otherwise healthy 35 year old male just for reference.
Minus the sore throat and ear ache, that sounds remarkably similar to my wife's West Nile this past summer. She would have the fever, brain fog, body aches for typically 4 or 5 days a week after the initial few months and it lasted 5 or 6 months total
Eventually she took some leave of absense for a week or two, burned some PTO, and started back slowly, doing 6 hour days, take a Friday off of needed...etc.
Anything stressful really made the west Nile come out of hiding. Even a phone call at work that was "extra".
She also slowly started walking, since initially as much as sweeping the floor for 5 minutes brought the symptoms on. Then after 5 min a day walking she would do 5 min twice a day and so on
All this per her Drs advice. She Eventually got over it that way. She got steroids multiple times that seemed to help jump start the healing but then she would have 2 good days, think things were good and hit the floor running only to regress.
I don't know if something like that would help with covid but I feel your pain
My wife was 41 at the time
I was laid off last year and unemployed for 4 months while I was experiencing the long hauler symptoms. I was able to keep my symptoms under control because I was living a stress-free life: working out everyday, going to the pool, hanging out with friends etc. The symptoms started to get bad again when I found a new job and started working lol. Go figure.jamey said:ea1060 said:Very interesting, your wifes symptoms sound exactly like mine. The littlest amount of stress will just seem overwhelming and then bring about the symptoms. Sometimes even writing a short email will seem like a huge chore and take forever to write.jamey said:ea1060 said:
Ive talked about my story several times before on this forum. But I'm an 11.5 month covid long hauler. Basically for the past 11.5 months I feel fine for 3-4 days then feel like absolute dog crap for 4-5 days. Rinse and repeat. Symptoms are typical covid: Feverish feeling, chills, feel warm, sore throat, ear aches, muscle/joint pain, fatigue, brain fog. I got fully vaccinated about a month and a half ago, it seemed to help a little but the symptoms came back in full force the past week and a half. Hard to get out of bed some days.
It's gotten to the point where I'm thinking about quitting my job and just focusing on recovering and my health. My job Can be pretty stressful and the stress triggers covid symptoms. Unfortunately there's not much the doctors can do besides tell me to wait it out and be patient. Ivermectin seems to help the long haulers somewhat so I've been thinking about asking my doctor for that. Theres several folks on the reddit long hauler sub that are still experiencing symptoms 14 months later with no end in sight.
Im an otherwise healthy 35 year old male just for reference.
Minus the sore throat and ear ache, that sounds remarkably similar to my wife's West Nile this past summer. She would have the fever, brain fog, body aches for typically 4 or 5 days a week after the initial few months and it lasted 5 or 6 months total
Eventually she took some leave of absense for a week or two, burned some PTO, and started back slowly, doing 6 hour days, take a Friday off of needed...etc.
Anything stressful really made the west Nile come out of hiding. Even a phone call at work that was "extra".
She also slowly started walking, since initially as much as sweeping the floor for 5 minutes brought the symptoms on. Then after 5 min a day walking she would do 5 min twice a day and so on
All this per her Drs advice. She Eventually got over it that way. She got steroids multiple times that seemed to help jump start the healing but then she would have 2 good days, think things were good and hit the floor running only to regress.
I don't know if something like that would help with covid but I feel your pain
My wife was 41 at the time
Yep, that's exactly what she experienced. She would even get a fever because she answered call, swept the kitchen for 5 minutes..etc
The only way she got over it was to avoid all those little stressors or activity. She probably wasted some time getting healthy by assuming, 3 good days, or 4 good days...then back to it. She'd get on a call and the fever and everything would come back.
So she basically had to force herself to do nothing for weeks. I think it was around then that the Dr suggested she do the 5 min, no stress walks to try and get her strength back.
I'm wondering of you could get short term disability
I just asked my wife what she did
1. 3 weeks of do nothing, no work, nothing
2. 2 weeks of work 50% days(but nothing stressful, others took that off her hands)
3. 2 weeks at 75% work days and this is when she started thr 5 min walk once a day, then twice a day...etc to build strength back
